When Lorna was born, surviving to adulthood with cystic fibrosis wasn’t something families dared to plan for.

Today, Lorna is 65 – and her story isn’t over. Neither is ours. 

Having lost two brothers and a son to CF, Lorna knows better than most why the work that remains is just as important as the progress already made. 

Trikafta is not a cure. Not everyone can take it. We’re so happy for those it helps – but sad for those being left behind.

- Lorna, living with cystic fibrosis

207

requests answered through our national CF helpline that connects people affected by CF to the information, resources and guidance they need, when they need it.

$3.2M

invested in CF research including significant partnerships with Genome Quebec and the Canadian Institutes for Health Research.

National recommendation

to fund Alyftrek, a once‑daily cystic fibrosis therapy—a critical step toward equitable access.

6,000+ 

users of our new Mental Health Resource hub, built in direct response to what our community asked for: practical tools, coping strategies, and support for people with CF and their caregivers.

Better patient experience

A new nurse mentorship program to support the delivery of evidence-based, compassionate and competent care to people with CF. 

300

people with CF and their caregivers met through Peer Connect, our new peer support program led by volunteers who know the journey firsthand.

Canada's first-ever national guidelines for CF care

Ensuring every person with CF receives the same evidence-based standard of care, no matter where they live. 

3,182

people in Canada are using CFTR modulator therapies to manage their CF, including an increased number of people with rare CF mutations as our advocacy translates to improved access. 

From progress to possibility, your support is what moves us forward. 

If you’d like to be part of what comes next, we’d love to have you with us. 

And to those who give monthly through our Breath of Life program: your ongoing commitment adds up to more progress, year after year. Thank you. 

YOUR IMPACT THIS YEAR

One standard for care, no matter where 

Introducing Canada’s first-ever guidelines for CF care.

For the first time, clinicians and people with lived experience came together to establish a single national standard for CF care. The result: a new approach to care that better serves the diverse health journeys of individuals living with cystic fibrosis in Canada today. 

Caring for the whole person 

Support for people in the CF community who experience anxiety and depression. 

Our Mental Health Resource Hub was created in direct response to what our community told us they needed: practical tools, local resources, and support for both people living with CF and their caregivers, who experience anxiety and depression at a higher rate than the general population. The hub was accessed over 6,000 times in its first year.

Supporting champions for better care 

180 attendees moving better care off the page and into practice. 

Our first-ever Canadian Cystic Fibrosis Conference took place in Calgary in 2025. It brought together clinicians, researchers, and community members to explore the new care guidelines and chart their path to implementation.

“I’m not thinking I will die in a few years. Each of us deserves to live that sort of life.”

- Audrey, living with CF

YOUR IMPACT THIS YEAR

Always someone to ask 

207 requests answered – from across Canada and around the world.

A CF diagnosis raises questions that don't always have easy answers. The Cystic Fibrosis Canada Helpline exists because no one should have to navigate cystic fibrosis without guidance, whether they're a newly diagnosed adult, a caregiver, or family reaching out from abroad. 

The experts no textbook can train 

12 trained facilitators. 44 people building community. 

Established in 2025, Peer Connect exists because lived experience is its own kind of expertise. Volunteers living with CF and guardians who know the journey were trained to lead group support sessions for their peers. Every participant reported feeling less alone because of the sessions – a reminder that connection itself is a form of care.

 

A community that keeps us moving forward 

300 members shaping research, care, and support from the inside.

The Elevate program brings together hundreds of Canadians affected by CF to directly shape what CF Canada does. In 2025, their input informed the new Mental Health Resource Hub, shaped the Canadian Guidelines for CF Care, helped guide our research funding and identified what newly diagnosed families need most. When our community speaks, they move us forward.

It’s the everyday moments and shared experiences in these [Peer Connect] groups that make all the difference.

- Amanda, a CF mom

YOUR IMPACT THIS YEAR

Funding the questions that still need answers 

$3.2 million invested in CF research – and the right partners to make it go further. 

Progress in CF has been remarkable. But longer lives bring new challenges – from CF-related diabetes to cancer risk to the side effects of the very therapies that have transformed the disease. This year, we invested in research to fill the gaps.

By partnering with the Canadian Institutes for Health Research, Diabetes Canada, the Canadian Cancer Society, and Génome Quebec, donor dollars went further than they could have alone. 

Pushing for access to what works 

A positive reimbursement recommendation for Alyftrek – and our work to make it stick.

When a promising new therapy is approved, the work isn't over – it’s just entering a new phase. Alyftrek, a once-daily CFTR modulator, received a positive reimbursement recommendation from the Canada Drug Agency in December 2025 – a recommendation we actively advocated for. 

Alyftrek could mean a first chance at a highly effective treatment for some – and a welcome alternative for others. We continue to urge every provincial and territorial drug plan to move quickly to cover it. 

Making sure no one is left out of what’s next

Clinical trials represent one of the most important pathways forward.

CF CanACT, our national clinical trials network, provides our community with access to CF trials in Canada, including gene therapy trials, offering hope to those whom current treatments cannot yet reach.

NATIONAL CORPORATE PARTNERS

Companies who make our cause their own

Behind every event, every program, and every breakthrough is a network of corporate partners who stepped forward for the CF community. 

From sponsorships to employee fundraising campaigns, their support – and the people who drove it from the inside – made a real difference this year. We're grateful for every one of them. 

Donors who make more possible 

The members of our Leadership Circle are visionaries who understand breakthroughs happen when people step forward. 

We are honoured to recognize them here — and deeply grateful for everything they make possible. Donors listed in this report reflect gifts of $5,000 or more made directly to CF Canada.

Organizations that put their weight behind our work 

We sincerely thank the following sponsors whose financial contributions helped advance our work, stretch every donor dollar further, and bring the CF community together in ways that matter. Thank you.

COMMUNITY AWARDS

Celebrating people behind the progress 

Our community awards recognize the volunteers, advocates, fundraisers, and community members whose dedication powers everything we do. In 2024, 69 extraordinary individuals were honoured – and in 2025, wherever possible, we celebrated them in person. 

From a mother who began volunteering the day her son was diagnosed, to a lung transplant recipient celebrating 22 years – the stories behind these awards are as varied as the people who received them. Watch to meet some of the 2024 recipients and hear what this recognition meant to them. 

The people who guide our work 

Our volunteer Board of Directors provides the oversight and strategic guidance that keeps Cystic Fibrosis Canada accountable to our mission – and to you.

Serving on the board allows me to give back with my skills and my heart. It’s my way of helping create a future where [my wife] Chloe, and every Canadian living with CF, can truly live without limits.

- Eric Saumure, volunteer CF Canada board member and CF husband

Cystic Fibrosis Canada is accredited by Imagine Canada – an independent recognition that our practices in board governance, financial accountability, fundraising, and people management meet national standards for the charitable sector. It's an accreditation that isn't easily earned, and one we're proud to hold. 

2025-26 financials at a glance

Statement of Net
Fundraising Revenue

(Net of direct fundraising costs)

Expenses

View our 2025-26 Financial statements

Until possibility becomes reality 

Lorna’s story isn’t finished. And neither is ours.

After 65 years, Lorna’s plans for the future are simple and full of meaning: to enjoy life to the fullest, day by day, with the people she loves. 

She has earned that – though she carries in her heart those in her life who didn’t get the chance. And far too many people in Canada living with CF are waiting for that chance too. 

That reality – of lives lost and lives still waiting – is a compass. As we look toward 2027, it points us forward. 

There is more to do. More research to fund, more doors to open, more Canadians to reach. And with your support, we will keep going – until the life Lorna describes is within reach for everyone living with CF.